Tuesday, June 14, 2011

Past Time for an Update

It's been a long while since Richard or I have updated the blog, and I apologize. I kept meaning to do a wrap-up post, and time kept getting away from me. But finally, here it is!

My skin is healing from the radiation burns, and thus far, I have no adverse side effects. My lungs are clear, my heart beat strong. I am back to doing stretches and yoga to rehabilitate my shoulder and arm. I'm getting stronger every day, and I love it. Next week, I'll return to physical therapy where the therapist will work on breaking up scar tissue inside the underside of my arm and help me to recoup my range of motion. She's fabulous.

The last I wrote, I said I would come back with information on the peripheral neuropathy I contracted from the chemotherapy treatments. I saw the neurologist oncologist at MD Anderson, and he gave me a thorough exam for balance, muscle strength, and sensation in my extremities. The bad news is, the nerves will likely continue to worsen. The good news is, meds can blunt the pain. The GREAT news is, the doctor is confident the neuropathy will not be permanent in my case. It will probably take a year or so for the nerves to heal...but they will heal. I am soo happy about this.

The medicine cocktail I'm on currently is working very well, and most of the time things don't ache, burn or hurt. I can especially tell the difference in the mornings when I get out of bed. Whereas I was hobbling to the loo and tripping down the stairs, I can walk again--slowly :-)--and I can go down the stairs holding the rail with only one hand. It's very encouraging. One terrible side effect of the medicine is swelling and weight gain, both of which I'm working hard to control. So far, the side effects are worth the cost. I'll let you know if this changes. :-)

I have several appointments in the coming weeks. June 28th with the neurologist oncologist, June 29th with the radiation oncologist, and July 8th with my oncologist. Since my doctors were very concerned with recurrence, which in my case will be fast and dirty, or (likely) not at all, I imagine this last appointment will herald a scheduled PET. With that in mind, I will probably wait to post again until early July, when I should have some news.

I can't thank my friends and family enough for all of your support, all of your prayers, and for sticking with me and Richard during this trial. God bless you and keep you.

Until July, then. Muah!

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